Spring is coming… And a stricter diet too, hopefully.

Hello everyone,
 
first of all I must apologize for not writing for such a long period of time. Since the last blog entry a lot of things have changed. I started at a new job (which I absolutely LOVE… it’s great to go to work and love what you do, hadn’t been there the last few years..). And I’m getting married in May. So it’s going to be another 10 exciting months… We also booked our honeymoon and I’m so excited.
 
But… let’s come to the not so well functioning part: my low protein diet. I just realized today that in a week from now I will have my yearly appointment at the hospital. Time to face it: I haven’t sent in as many blood cards as I should have, AND, what is even worse, I haven’t kept the diet as good as I should have… I regularly take the formula (tablets at present, I really get along very well with taking them) but I use to eat noodles, bread, egg etc. (I also eat low protein products, it depends on my mood / my craving).  Plus I don’t have an overview of the daily intake. I don’t feel good with this. I want to change it. But it’s hard, you might know it. Today, I started off with writing down everything I’ve been eating so far and I ended up with 281mg Phe. It’s around midday now.
 
I just want to get involved more in this blogging project again because I feel that it could help me to get back on track again. I will let you know about my progress and how I get along within the next few days. Hopefully my motivation doesn’t vapor, but constantly grows stronger… I would appreciate your feedback, tips or motivation comments / e-mails. Write me, what’s going on in your (PKU-)life… I look forward to hearing from you…
 
Love,
Katie xxx

My PKU Kitchen

Originally posted on Passionate about PKU:

I have my kitchen set up to best manage my PKU. The kitchen is the heart and soul of the management of PKU.
When you walk into my kitchen you know who out of cole and I spend the most time in it.

I have 2 pantry’s one for cole, and one for me. Mine is packed with all my baking goods and low protein foods.

Over my the microwave I have a stack of PKU Cook books, my recpie binder, my pku food list binder . I have bowls of fruit and a bowl of shallots, onions and potaotes. under the microwave is a stand alone counter full of all my baking sheets, measuring cups and spoons. Above the microwave is 3 rows of shelves that hold my formula, my sports bottles and my straws. Along the microwave itself is all my MIO’s and flavours for my bettermilk.
My…

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September is newborn screening awareness month!

Originally posted on Passionate about PKU:

As many of you may know, September is Newborn Screening awareness month!

 

Many people do know what newborn screening is or what it does until there child is diagnosed with something.  Many people just know it as the heal poke test.  it is my goal for September to educate as many friends and followers as I can in what it is, what it does, and why it is important. It saddens me to hear how many parents wish they could denies newborn screening to save their baby from the “pain” or “torture” or just from being “poked and prodded” so much after birth. specially if the birth is traumatic.  As a nurse and a women with PKU I feel that education is so important and should be apart of birthing and pregnancy education. I wish all nurses, doulas and mid wife’s would include it in the education and support…

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I lost track – somehow…

Good Morning everyone…

I’m sad to say that I somehow lost track of PKU diet – again. I’m very frustrated… but full of good intentions. There will be  a change of job by the beginning of October, so I want to start off by tomorrow again, to be in best shape for the new start.

I want to start the traditional way. Writing down and weighting every little bit I’m going to eat. I hope I can make it. I have like 1.000.000 tries behind me. It’s not, that I don’t know what I am doing this for or why. BUT I FIND IT SO HARD AT THE MOMENT. Have you been there? I’ve started the past week twice (!!!) and lost track somewhere during the day because either a colleague brought some cake (never underestimate the power of – bad- thoughts during work ;o) or in the evening when I was to lazy to cook…

Yesterday we went to a wedding (by the way, it was a wonderful day – just want my wedding to be like this…), and our friends did a great effort with organising special food. I had a salad with mushrooms for starter, a pumpkin soup, then I got a rice risotto with mushrooms and a sorbet as dessert. Wow. It really was delicious. I’m always a little torn between feeling like a cheater (because I actually DO eat normal things from time to time at present) and asking for special low protein menue on the other hand. Have you ever felt like this?

Pleeeeeease send me some good thoughts or motivation. I really want to go back to diet, get better levels, but I need to get into this whole strict diet thing deeper again. It’s always everything about making it begin, about the first steps, once I’m into it, it’s much easier, since then I’m proud, I got everything under control, so I won’t spoil my level easily and thoughtlessly.

So in need for your help, so much mess,

Love,

Katie xxx

 

Poll – which social media sites do you use most frequently?

Hey everyone,

once again I need your quick feedback. As some of you might know, you also can reach PKUTreasurechest on Facebook and on Twitter (@PKUblog). I’m also thinking about joining tumblr, linkedin and pinterest, but I’m not sure, whether any of you use those rather than facebook or twitter (or something else maybe?).

So thanks a lot for your comment, if you use something not listed in the poll I would really appreciate your comment, so I can decide whether it makes sense to create another account or not ;)

Have a great day.

Love,

Katie xxx

My little herb garden

Hey :)

it all started when I got this little herb jar as birthday present. Lots of different herbs.

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I decided to have some more on our little balcony. Haven’t tried much with those herbs, but I am really eager to have some nice drinks once the peppermint has grown a little bigger :) I will also have my coriander soups with this fresh grown coriander. I want to make some rosmarin-potatoes too. I wanted to make some punch recipes with this woodruff but unfortunately it already bloomed when I got it so I couldn’t use it anymore… :( Maybe next year then! But I will pamper you with some good punch recipes anyway.

The hot nights can come :)

Do you have your own herb garden?

Love,

Katie xxx

It’s all about the right arrangement..

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Hey :)

I just wanted to say, that it’s all about the right arrangement, no matter what is your meal. The meal in the picture was actually for my fiancé and therefore not low in protein. But just saying, it’s the same for our meals. I needed to go shopping, so I had only a poor choice at home… so I made mash with vegetables and salad.

But it actually looks delicious, doesn’t it?

Love,
Katie xxx