Low Phe Products

Hi everyone,

here is a new poll.

I just wondered how often you order low protein products.

I really like them (variety and also taste of most of them) and I’m trying now to order monthly, so I would always have a certain amount at home.  It helps a lot when you’re craving for “nonsense” like normal chocolate or a noodle meal…

Hope you had a good week?

Love,
Katie xxx

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Sorry…

Hi everybody,

sorry for not blogging for such a long time. I’m still on my “Losing weight project” and I’m rather successful. I’ve already lost 4 kg with means I still have 6kg left. I’m really happy about it, but it’s hard and I’m also struggling with PKU diet.

I couldn’t eat noodles and stuff as I use to… By the way, I’m a weight watchers online member and this works also for PKUs!!! Of course, our special food is not in the lists but you can find out how much points f. e. low protein milk contains when you enter the nutrition amounts into a table this is great!

And I have a dream… 😉 I would love to have such a system like weight watchers for PKUs. So you can enter your daily food and quantity and the system automatically calculates the phe amount and (if requested) calories! Plus you could get in touch with other PKUs on the platform. THAT WOULD BE AWESOME! You would have a fully overview, also a possibility to enter blood levels… If I would have better knowledge, I would do it myself. Anyone out there who can realize this project?

By the way on Monday, I will have my check up at the hospital. I’m expecting unsatisfying feedback from the doctors, since I haven’t yet send in any blood level for this year 😦 I promise I will do better from now on.

How are you doing? Whats going on in your lives?

Love,
Katie xxx